Welcome to the Amyloidosis Patient Registry

Progress Report on Amyloidosis Patient Registry Upgrade

The ASG is continuing to move forward on the upgrade of the Amyloidosis Patient Registry platform. During this process, we are unable to accept new registrations. While this move has taken longer than anticipated, we believe that the new platform will be far superior to its predecessor and well worth the wait. The updated registry will feature a brand new look that is easier to navigate, has enhanced security protocols, and gives you the ability to connect all of your electronic health portals in one, easy to access location.

Once the transition is completed, we will notify current registrants via email, in addition to posting an announcement here. Please check back in late September for additional details on the upgrade. We thank you for your continued patience and interest in the Amyloidosis Patient Registry as we make these important improvements.

Paula Schmitt
Executive Director
Amyloidosis Support Groups